My doctor (who I love), never really talked to me about other outside factors that could possibly still cause breakthrough seizures. It will be up to you. The meds can’t do it all, the doctors can’t do it all. You have to cultivate the freedom you desire.
Living with Epilepsy, or any chronic illness, requires you to have the best healthcare team available. Finding these physicians are not always easy. Referrals, research, office visits, testing, its like an unending cycle just to find someone that suits you and your needs.
You have permission to rest. You are not responsible for fixing everything that is broken. You do not have to try and make everyone happy. For now, take time for you. It’s time to replenish. -Unknown If anyone tells you that you deserve a vacation or you need a break, LISTEN TO THEM. For so
This blog post is part of the Self-Care Movement hosted by Self Care Catalysts. Learn more at www.selfcaremvmt.com. Use hashtag #selfcaremvmt on all social media outlets. What if I told you that you can change your life with Epilepsy by simply putting yourself first? If I also told you that practicing Self-Care would be the key
Seizures. Epilepsy. Grand Mal Seizures. Tonic Clonic. Temporal Lobe Epilepsy. Nocturnal Seizures. All of these words were used to describe my condition my entire life. I’ve been in and out of hospitals and neurologist offices for the last 30 years but never had I heard “Seizure Clusters” to classify my seizures. I’m a research queen,
I can quote Forrest Gump all day long and that statement explains the last few months of my life perfectly. It has been filled with so many twist and turns. Some unimaginable events, some things I tried to prepare myself for but still was not ready for. Life has just been crazy. In the midst
This post is part of the Epilepsy Stigma Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you! Since seizures had a name and epilepsy was a known diagnosis, stigmas were attached. Epilepsy Stigmas are one of the toughest barriers to breakthrough. Society often
Last year around this time, I wrote one of my most read topics By The Grace of God.In that post, I let the world in on a side of my life I never really discussed. My faith. I stated that I knew of God, I believed, but I did not KNOW God. There is a
In life, we often go through things and look to others that shared similar situations, for support. We want someone who can say “hey, that happened to me too, or I understand because I’ve been there” and really mean it. We look for empathy not just sympathy in a sense. When it comes to seeing
“Never say anything that couldn’t stand as the last thing you ever say” –Auschwitz Survivor I have some serious questions. Questions I don’t think many stop to ask before they get diarrhea of the mouth. Before they start to make jokes about someone’s illness, before pure ignorance starts to flow from their lips. Ready? 1.