Make sure you feel like a partner in your care and not just a patient.
As technology and the advancement of patient care continues to move forward, a greater need grows for Clinical Trials, participants, and staff. Could the stigmatization against the innovation of Clinical Trials be holding us back from a possible cure for epilepsy?
Why does it have to be a matter of either/or? You can either pay outrageous premiums, get a doctor who may not understand your condition, or go uninsured all together? Something has got to give in this broken system.
I encourage you to be your own best advocate. Don’t be afraid to ask questions. Don’t wait until the appointment is over and wish you would have said something or got that burning question in.
Living with Epilepsy, or any chronic illness, requires you to have the best healthcare team available. Finding these physicians are not always easy. Referrals, research, office visits, testing, its like an unending cycle just to find someone that suits you and your needs.
Hearing the phrase “You have Epilepsy” can be one of the scariest things anyone can hear, but I promise you can have a meaningful, fulfilling life just by being informed. Be your own best advocate!
You have permission to rest. You are not responsible for fixing everything that is broken. You do not have to try and make everyone happy. For now, take time for you. It’s time to replenish. -Unknown If anyone tells you that you deserve a vacation or you need a break, LISTEN TO THEM. For so
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through June 30. Follow along and add comments to posts that inspire you! Every time I hear the word “seizure” during a television show I automatically start to cringe. How will it be displayed this time? Will it be a
This blog post is part of the Self-Care Movement hosted by Self Care Catalysts. Learn more at www.selfcaremvmt.com. Use hashtag #selfcaremvmt on all social media outlets. What if I told you that you can change your life with Epilepsy by simply putting yourself first? If I also told you that practicing Self-Care would be the key
Seizures. Epilepsy. Grand Mal Seizures. Tonic Clonic. Temporal Lobe Epilepsy. Nocturnal Seizures. All of these words were used to describe my condition my entire life. I’ve been in and out of hospitals and neurologist offices for the last 30 years but never had I heard “Seizure Clusters” to classify my seizures. I’m a research queen,