I encourage you to be your own best advocate. Don’t be afraid to ask questions. Don’t wait until the appointment is over and wish you would have said something or got that burning question in.
Seizures. Epilepsy. Grand Mal Seizures. Tonic Clonic. Temporal Lobe Epilepsy. Nocturnal Seizures. All of these words were used to describe my condition my entire life. I’ve been in and out of hospitals and neurologist offices for the last 30 years but never had I heard “Seizure Clusters” to classify my seizures. I’m a research queen,
“Never say anything that couldn’t stand as the last thing you ever say” –Auschwitz Survivor I have some serious questions. Questions I don’t think many stop to ask before they get diarrhea of the mouth. Before they start to make jokes about someone’s illness, before pure ignorance starts to flow from their lips. Ready? 1.