We spend most of our lives waiting until things correctly align before achieving our goals. I no longer wanted to live that way. Seizure freedom, to me, means to live freely with my diagnosis.
Remember to learn to take care of YOU before you try to save the world. I promise this will allow you to be a greater champion in the long run! Self-care is the best care, girl.
Make sure you feel like a partner in your care and not just a patient.
My doctor (who I love), never really talked to me about other outside factors that could possibly still cause breakthrough seizures. It will be up to you. The meds can’t do it all, the doctors can’t do it all. You have to cultivate the freedom you desire.
As technology and the advancement of patient care continues to move forward, a greater need grows for Clinical Trials, participants, and staff. Could the stigmatization against the innovation of Clinical Trials be holding us back from a possible cure for epilepsy?
I realized I had to look at food as medicine, as something that served my body. – Unknown
Why does it have to be a matter of either/or? You can either pay outrageous premiums, get a doctor who may not understand your condition, or go uninsured all together? Something has got to give in this broken system.
I encourage you to be your own best advocate. Don’t be afraid to ask questions. Don’t wait until the appointment is over and wish you would have said something or got that burning question in.
Living with Epilepsy, or any chronic illness, requires you to have the best healthcare team available. Finding these physicians are not always easy. Referrals, research, office visits, testing, its like an unending cycle just to find someone that suits you and your needs.
Hearing the phrase “You have Epilepsy” can be one of the scariest things anyone can hear, but I promise you can have a meaningful, fulfilling life just by being informed. Be your own best advocate!