We spend most of our lives waiting until things correctly align before achieving our goals. I no longer wanted to live that way. Seizure freedom, to me, means to live freely with my diagnosis.
Make sure you feel like a partner in your care and not just a patient.
My doctor (who I love), never really talked to me about other outside factors that could possibly still cause breakthrough seizures. It will be up to you. The meds can’t do it all, the doctors can’t do it all. You have to cultivate the freedom you desire.
Why does it have to be a matter of either/or? You can either pay outrageous premiums, get a doctor who may not understand your condition, or go uninsured all together? Something has got to give in this broken system.
I encourage you to be your own best advocate. Don’t be afraid to ask questions. Don’t wait until the appointment is over and wish you would have said something or got that burning question in.
Living with Epilepsy, or any chronic illness, requires you to have the best healthcare team available. Finding these physicians are not always easy. Referrals, research, office visits, testing, its like an unending cycle just to find someone that suits you and your needs.
Hearing the phrase “You have Epilepsy” can be one of the scariest things anyone can hear, but I promise you can have a meaningful, fulfilling life just by being informed. Be your own best advocate!
This blog post is part of the Self-Care Movement hosted by Self Care Catalysts. Learn more at www.selfcaremvmt.com. Use hashtag #selfcaremvmt on all social media outlets. What if I told you that you can change your life with Epilepsy by simply putting yourself first? If I also told you that practicing Self-Care would be the key
Seizures. Epilepsy. Grand Mal Seizures. Tonic Clonic. Temporal Lobe Epilepsy. Nocturnal Seizures. All of these words were used to describe my condition my entire life. I’ve been in and out of hospitals and neurologist offices for the last 30 years but never had I heard “Seizure Clusters” to classify my seizures. I’m a research queen,
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