Why does it have to be a matter of either/or? You can either pay outrageous premiums, get a doctor who may not understand your condition, or go uninsured all together? Something has got to give in this broken system.
I encourage you to be your own best advocate. Don’t be afraid to ask questions. Don’t wait until the appointment is over and wish you would have said something or got that burning question in.
Living with Epilepsy, or any chronic illness, requires you to have the best healthcare team available. Finding these physicians are not always easy. Referrals, research, office visits, testing, its like an unending cycle just to find someone that suits you and your needs.
Hearing the phrase “You have Epilepsy” can be one of the scariest things anyone can hear, but I promise you can have a meaningful, fulfilling life just by being informed. Be your own best advocate!
This blog post is part of the Self-Care Movement hosted by Self Care Catalysts. Learn more at www.selfcaremvmt.com. Use hashtag #selfcaremvmt on all social media outlets. What if I told you that you can change your life with Epilepsy by simply putting yourself first? If I also told you that practicing Self-Care would be the key Read More
Seizures. Epilepsy. Grand Mal Seizures. Tonic Clonic. Temporal Lobe Epilepsy. Nocturnal Seizures. All of these words were used to describe my condition my entire life. I’ve been in and out of hospitals and neurologist offices for the last 30 years but never had I heard “Seizure Clusters” to classify my seizures. I’m a research queen, Read More
Cramps, seizures, fatigue, cravings for Twix, a root beer (ok maybe that’s just me) and pimples are sure signs my not so friendly friend is coming. Yes, I said seizures! If you didn’t know, a change in your hormones can definitely be a major trigger for seizures in women. These types of seizures are known Read More
This post is part of the Epilepsy Blog Relay™ which will run from November 1 through November 30. Follow along and add comments to posts that inspire you! We have reached the half way mark of Epilepsy Awareness Month 2015! Crazy how fast time flies! Let me start off by stating, this post is no Read More
I can quote Forrest Gump all day long and that statement explains the last few months of my life perfectly. It has been filled with so many twist and turns. Some unimaginable events, some things I tried to prepare myself for but still was not ready for. Life has just been crazy. In the midst Read More
This post is part of the Epilepsy Stigma Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you! Since seizures had a name and epilepsy was a known diagnosis, stigmas were attached. Epilepsy Stigmas are one of the toughest barriers to breakthrough. Society often Read More