This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along and add comments to posts that inspire you!
Yes, my lovies I am back gracing the net again. If this is your first trip to my little corner then welcome. I’ve been away for a while now fighting seizures and other personal matters but never too far away. There’s been so much going on, from speaking at conferences to upcoming events all in the name of Epilepsy Awareness. So know that I am always fighting for us even if its not on here. I cannot wait to pour out everything I have been holding in over the past few months but first things first. I am not being paid to endorse any products in this blog post, however, they have been a tremendous help in allowing me to take control of my Nocturnal Seizures. These were the seizures I could never figure out how to tame until now. Let me explain.
Nocturnal Seizures are seizures that occur exclusively during sleep. The majority of nocturnal seizures occur in light sleep – soon after falling asleep, before waking or around awakening. This is common of those who suffer from Temporal Lobe Epilepsy like myself. Lack of sleep, Sleep deprivation, drastically altering your sleep pattern can play major roles in causing these types of seizures. You can find more information on Nocturnal Seizures here.
One of my many Seizure Triggers is sleep deprivation (see previous blog on seizure triggers here). Folks often laugh or make this weird face when I say I HAVE to get at least 7 hours of sleep a night and no more than 9. I cannot get too little sleep or too much sleep. For someone living with epilepsy, there is such a thing as too much sleep. It could literally be a matter of life or death. When I realized that my seizures were happening in my sleep again, I decided to start monitoring through my FitBit. The unique thing about these fitness wearables is that you are not limited to analyzing data just in one area. In today’s world of technology, we have the ability to sync data across multiple platforms and devices. I don’t only have to use my FitBit app, I can sync it to my Epilepsy Storylines application on my iPhone as well. The data imported there I can share with my neurologist to better treat these things. The data is super easy to read and understand.
After paying close attention to the data gathered for a number of weeks, I noticed the nights I was most restless, I would always have a seizure either during that night or the following morning. It was almost guaranteed. Once I saw the problem spots, I was able to make the necessary adjustments. From temperature in my room, pillows, to winding down 30 minutes earlier. You would be surprised the changes you could make just by paying attention. It doesn’t just happen at night either, this counts for those afternoon naps people enjoy so much..uh not me. That nap can throw off my sleep schedule so quickly, I just avoid it all together.
I know there are other devices out there made specifically for seizures and sleep but not everyone can afford them and some are made to monitor grand mal seizures only. This has been my only way to help me discover and control this part of my life with epilepsy. I’ve included some screenshots from nights where I was extremely restless and logged seizures the following morning and nights I slept much better and no recorded seizures.
I can’t stress enough how knowing your body and taking care of it is so important. Technology has come such a long way and continues to grow to help us better manage our lives with epilepsy. Read about it, get to know it, and grow WITH it.
As always, check with your doctor before trying anything new. Whit didn’t tell you to do it 😉
NEXT UP: Be sure to check out the next post tomorrow at http://livingwellwithepilepsy.com/ for more on Epilepsy Awareness. For the full schedule of bloggers visit livingwellwithepilepsy.com/
Be sure to check out the Epilepsy Blog Relay Thunderclap to raise epilepsy awareness. And don’t miss your chance to connect with bloggers on the #LivingWellChat on March 31 at 7PM ET.